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Identifying and recruiting participants for health research

Thursday 23 July 2015

By:

A public dialogue for the Health Research Authority

The Health Research Authority (HRA) in conjunction with Sciencewise commissioned OPM Group to run a public dialogue on identifying and recruiting participants for health research. The final report is available to download.

The specific objectives of the dialogue were:

1. To inform the development of the HRA’s new UK wide Policy Framework to replace the Research Governance Framework and its associated operational guidance.

2. To provide opportunities for members of the public and patients to discuss and explore their aspirations and concerns about the governance of health research in relation to recruitment, data and consent, especially:

a. How patient data might be used in order to invite people to join research studies and who participants think should be allowed to access patient records in order to check eligibility

Patient Record Access

 

b. Different models for approaching potential research study participants including consenting to being approached directly about research

Recruiting Patients For Health Research – Participant Vox Pops

 

c. The plan to develop simplified models of consent for simple and efficient clinical trials of already licensed drugs and other interventions in common use.

Simplified Consent